Supporters
of e-Health initiatives generally recognize that advancements in
ICTs, the wide-scale review of the health-system, and the
increasing interest in exploring new approaches to health-care
delivery, financing and management can benefit the continued
development of e-Health initiatives. It can be argued, as this
author does, that e-Health initiatives in Canada can play a
significant role in mitigating the impact of some of the
challenges to the system described above, if not eliminate many of
them from the debate altogether. Health data is already essential
to health services resource planning in Canada. It can also play a
substantial role in reducing duplication of services, realizing
operational efficiencies, and improving the overall quality of
health care.
Promise of
e-Health
But
what exactly is e-Health, and what is exactly is its promise?
The
term e-Health has been used to describe a variety of activities
including almost any electronic exchange of health-related data,
voice or video. The definition that most nearly describes what is
understood within the context of this article is the following:
e-Health
is a consumer-centred model of health care where stakeholders
collaborate, utilizing ICTs, including Internet technologies to
manage health, arrange, deliver and account for care, and manage
the health care system [3]
While
definitions of what correctly falls within the scope of e-Health
may vary, what is consistent, is the excitement around perceived
benefits and the rush to move forward with collaborative
opportunities using advanced technologies in health information.
e-Health
has almost no "history", nor baggage, as it enters the
health-care discussion. It offers a means to draw together in
collaborative partnerships governments, organisations and
professionals in ways that have not before been possible. Numerous
stakeholders, including consumers, clinicians, administrators and
politicians, are already actively involved in e-Health
initiatives.
ICTs
are able to reduce the effects of geographic isolation, harsh
climate and low population densities by providing a mechanism for
remote data access, health-information sharing and medical
support; as well as clinical examination, diagnosis and treatment:
bringing the health-system and health-care provider to the
patient.
ICTs
in e-Health initiatives increase our ability to meet challenges in
the provision of primary and tertiary care. Subsequently, they may
reduce or prevent adverse patient outcomes, reduce costs to the
system of repeat diagnostic testing, redundant record keeping, and
high travel costs associated with seeking and receiving care in
centres located far from the patient.
Various
new ICTs transcend traditional health system divides, offering a
means to develop more complicated and advanced data sharing,
cooperation and cost-sharing between jurisdictions, professionals
and facilities. Political concerns about health-system financing,
viability and sustainability are moderated by the potential for
cost- and risk-sharing provided by ICTs and e-Health initiatives.
The
question of the provision of quality health services to a
multi-lingual and multi-ethnic population are also met in part by
e-Health. The financial stress being felt by a burgeoning
high-needs aging population will be somewhat alleviated as cost
savings are found through e-Health. The aging population will be
better served by a reduction in repeated testing, drug
interactions of inappropriate prescriptions, facilitated by an
easily accessible electronic health record. They will benefit from
a reduced requirement for long-distance travel for care, and may
even be able to remain in their own communities and homes longer,
without the oft required move to centralized facilities for
higher-needs late-life care.
e-Health
initiatives provide a means to overcome linguistic and cultural
challenges to the health-system. In some jurisdictions governments
are legally required to provide care in French and English, in
others they provide some level of service in dozens of languages,
and in others the immigrant populations suffer for the lack of
language appropriate services. Repeated clinical interviews and
tests, multiple referrals and other repetitive and perhaps
unnecessary contacts with the health system and professionals is a
barrier to care for many whose abilities in French and/or English
are limited.
All
manner of health-care providers can benefit from e-Health
initiatives and the use of ICTs in clinical settings. e-Health can
allow for access to patient records by pharmacists, sharing of
information between clinicians and even between same-site
facilities. Desk-top and live on-line access to patient records,
information that supports clinical decision making, and
health-system information, such as on-line booking of specialists,
along with a host of other possible uses of the new technologies
will improve the clinical bench-strength of providers, patients
and the consumer. e-Health technologies also allow for the
development continuing professional education for providers in
isolated locales.
e-Health
reduces the stress on an often overburdened system. Seasonal
swings in transmittable diseases, such as the flu, have led to
crippling overuse of the emergency services in hospitals. E-Health
mitigates this by providing a means for some out-of-hospital care,
and by providing information on what is a condition requiring
immediate emergency treatment via tele-triage centres.
Fiscal
challenges are mitigated by ICTs and e-Health developments that,
as described above, reduce travel requirements and waiting times,
increase cost- and risk-sharing, reduce replication and
redundancy, improve positive outcomes, reduce overall
system-management and patient costs, and improve the quality of
information available outside of acute-care facilities.
By
increasing our capacity to meet unique geographic, population and
political challenges, ICTs and e-Health moderate the political
debate and public concerns about the sustainability of the current
health-system.
e-Health
challenges
Canada
faces a number of challenges in the development of effective
e-Health solutions. Of primary concern is the inertia of
traditional agendas, and ways of doing things. Divisions between
health-professions, the public-private sectors, facilities, levels
of government and cultural communities generally mitigate against
large national inter-jurisdictional projects in the public sector,
and new large-scale investments in the health sector.
The
technologies themselves, as well as their deployment, are
challenging matters. There are questions about how to properly
automate the health-system, and the desktops of clinicians. Which
technical standards are to be adopted? Is the current level of
technology and technological-sophistication of the providers and
public sufficient to the task? What proprietary products will the
public sector invest tax dollars in? How do we integrate the
current system's data "silos"? Some of the technologies
remain unproven in extremes of climate and in far-north locations
of the earth's surface. There are limitations imposed by the
fragility and newness of certain technologies and products in
situations where ongoing technical maintenance and operational
services are next to non-existent.
Other
challenges include the development of a national "infostructure"
to support inter-jurisdictional data-sharing; the establishment of
data and technical standards and health informatics systems; and,
financial investments in technology and deployment. There are
challenges with the education of sufficient numbers of informatics
specialists to implement, operate, manage and continue the
development and improvement of the technologies and the system.
Though
Canada has claimed one of the highest Internet user-rates in the
world, this level of sophistication is not played out to the same
degree across the country. Socioeconomic, cultural and geographic
influences limit connectivity, performance and possibilities.
Public and professional acceptance of the new technologies in the
place of old ways – such as, keying up a live on-line Internet
consultation instead of sitting in a waiting room – is
essential.
An
increasing concern with personal privacy and information
confidentiality and the recent proclamation of Privacy and
Confidentiality legislation across the provinces and territories
is a considerable challenge to the development of
inter-jurisdictional data sharing arrangements and to storage and
manipulation of data holdings (especially patient records).
Clearly,
large financial and human resources must be invested in e-health
to realize the full potential of the technology. Actual
expenditure on known Canadian e-health projects was a relatively
low $31.7 million, in 1999–2000. Evidence suggests that e-Health
is at least 10 years behind other information management intense
sectors, such as banking.
Meeting the
challenges
The
Canadian health sector has positioned itself to address challenges
to both the health-system in general and to the development and
implementation of e-Health solutions. A number of initiatives and
organsiations have sprung up in the last decade to meet the
challenges of geographic isolation, climate extremes, shifting
population demographics, political dynamics, cultural differences,
financial considerations, limitations imposed by technologies,
lack of standards, low levels of automation in clinical settings
and privacy and confidentiality.
In
1994 a number of government and nonprofit health and statistics
agencies were consolidated under the Canadian Institute for Health
Information (CIHI), to improve the health of Canadians and the
health system. Mandated by Canada's federal, provincial and
territorial health ministers, CIHI is a national, not-for-profit
organization responsible for developing and maintaining the
country's comprehensive health information system.
CIHI's
core e-Health related functions include identifying health
information needs and priorities; and collecting, processing and
maintaining data for comprehensive and growing health databases
covering human resources, health services and expenditures. CIHI
also coordinates the setting of national standards for financial,
statistical and clinical data, as well as standards for health
informatics, such as HL7, and telematics.
Since
1999 CIHI has led the Roadmap Initiative collaborative
effort between CIHI, Statistics Canada, Health Canada and many
other groups at the national, provincial, territorial, regional
and local levels. The initiative's aims include the development of
new national data holdings, expanding existing ones, and fostering
better data and technical standards for gathering information and
for data protection.
CIHI
has helped shape the national agenda for information management
and information technology standards in health care. It provides a
neutral forum for standards discussion among Canada's health and
health IT leaders.
In
2000 the federal, provincial and territorial governments created
the independent, not-for-profit Canadian Health Infoway (Infoway)
corporation. The federal government committed to provide a $500
million budget. The vision of Infoway is a high-quality,
sustainable and effective health care system supported by a
pan-Canadian health infostructure that provides residents and
health care providers timely, appropriate and secure access to the
right information whenever and wherever they enter the health care
system.
The
Infoway mission is to foster and accelerate the development
and adoption of electronic health information systems with
compatible standards and communication technologies on a
pan-Canadian basis. The objectives of the Infoway
corporation are:
•
To accelerate the development and adoption of modern systems of
health information and communication technologies.
•
To define and promote standards governing shared data to ensure
the compatibility of health information networks:
•
To support the adoption of such standards for health information
and compatible communications technologies for the health sector,
•
To enter into collaborative arrangements as required with the
governments of Canada, provinces and territories, corporations,
not-for-profit organizations and other public and private partners
for the development and adoption of standards and technologies,
and
•
To incorporate standards that protect personal privacy and
confidentiality of individual records and security of health
information.
Infoway
is a major development in Canada and offers much promise for the
acceleration of e-health initiatives.
The
provincial governments are also active players in the development
of e-Health initiatives. The Newfoundland and Labrador Centre for
Health Information, for example, is mandated by the province to
develop a Health Information Network (HIN) to link provincial
hospitals, long-term care facilities, doctors, pharmacists, and
health and community services. The Saskatchewan Health Information
Network is establishing (electronic connections to enable access
to various types of health and patient information between health
service sites across the province, including physicians' offices,
health centres, home care providers, hospitals, emergency response
sites and nursing homes. Alberta we//net (read "wellnet")
was founded in 1997 to address access to and the quality of health
care, and the increasing costs associated with care delivery.
Alberta we//net is the umbrella for a series of province-wide and
regional initiatives to build an integrated health information
network in that province and to facilitate improvements to the
delivery of health services by improving access to health
information.
Challenges
presented by the accessibility and provision of care in remote
communities have been under considerable scrutiny. In recent years
numerous e-Health initiatives have been actively addressing the
challenge presented by geography. Programs such as Ontario's NORTH
(Northern Ontario Remote Telecommunications Health) Network, and
the British Columbia Peace Liard Telemental Health provide remote
specialist consultations, continuing medical education and patient
education to isolated locations. They utilise two-way television
and simultaneous transmission of visual and audio signals from
various medical peripheral devices, such as electronic
stethoscopes and otoscopes.
Challenges
concerning standards, technologies and product choices are being
considered at a number of levels. CIHI and the Canadian Standards
Association lead Canada's participation in the International
Organization for Standardization's Technical Committee on
Health Informatics (ISO TC215). Through this committee Canada
is active in the development of national and international
standards for data encryption, country identifiers, data models
and other matters that are the technical bedrock on which e-Health
initiatives are based. Technical and product considerations are
being addressed by numerous provincial and inter-provincial
organizations, such as Ontario's NORTH (Northern Ontario Remote
Telecommunications Health) Network, and the Central BC and Yukon
Telemedicine Project.
The
promise of intergovernmental cooperation and partnership is being
realized across all of the provinces and territories. The Western
Health Information Collaborative (WHIC) is an example of such
cooperation, between four western provinces and the three northern
territories to explore collaborative e-Health initiatives. WHIC is
actively engaged in the utilization and further development of
standardized electronic insurance claims, implementation of
electronic health records, inter-jurisdictional provider
registries, consumer on-line information access and clinical
information support networks.
Integrating
and coordinating public and private sector e-Health initiatives is
taking place along a number of lines. The National Electronic
Claims Standard project, coordinated by CIHI, is working to
develop a single electronic health claims standard leading to
consistency in data capture, increased efficiency, accuracy and
education throughout the health sector; and, providing the
foundation for information exchange. The project is a
collaborative effort of federal and provincial ministries, public
associations and private companies.
Governments
and large national agencies are not the only driving forces in
e-Health. Private companies, hospitals and health-care provider
associations are actively and creatively involved in e-Health
initiatives. Numerous private companies have developed and are
promoting the development of electronic health records, systems
for health care transaction and business-to-business e-commerce,
and clinical automation systems in networks of clinics, private
doctor's offices and local hospitals and specialists. Large
hospital facilities and multi-site hospital corporations are
developing mechanisms to share data, records and other information
within and between sites and departments. The Hospital for Sick
Children in Toronto, Ontario is active in the provision of
national and international remote health consultation and care.
Their International Telehealth Program, currently provides second
opinion patient referrals through Telehealth technology with
facilities in Argentina and Israel. Numerous hospitals and
paediatricians in Ontario collaborate in the Child Health
Network-Health Information Network (HiNet.) In HiNet clinical
records from consenting patients (or parents) are stored and
access provided to health care professionals. The system is
currently being extended across Ontario and to interested
paediatricians in other jurisdictions.
e-Health
can help resolve questions of equitable access to services in
French and English by directly addressing the question of
multi-lingual service provision. Both the Telehealth Ontario
telephone-nursing project and the British Columbia Healthguide
Nurseline offer phone consultation with nurses that utilise
over-the-phone translation services with a pool of 100 available
languages. The development of integrated readily accessible
electronic health records reduces redundant contacts with the
system and providers, providing relief for non-English/French
speakers from the stress of repeated unnecessary contacts with the
system.
Various
legislation being enacted at all levels of government across the
country, are aimed in part at improving confidence in the privacy
and confidentiality of personal health information. In
consultation with various health sector agencies, this legislation
is being drafted, or applied through regulation, in a manner that
also accommodates the appropriate use of health information for
health care delivery and health system management.
Patients
have responded positively to many of the new technologies and
their application. While many telehealth technologies and projects
are relatively new, evaluations of early results suggest
significant promise. Recent systematic reviews of studies of
patient satisfaction with telemedicine indicated that under ideal
circumstances patients and care providers accept and are generally
satisfied with the care they receive and can give using e-Health.
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